It’s hard to know what to say to someone facing a life-altering medical diagnosis like Parkinson’s disease.

Even with the best intentions, our words may become tangled or awkward as we attempt to comfort a loved one.

Recognizing the delicate nature of the subject, PCLA looked to its own community for the most helpful words and phrases people with Parkinson’s have received from loved ones and doctors.

We sent out a survey with one question: “What are the most effective words of encouragement you’ve received as a person with Parkinson’s?” 

Following is a summary of those responses, separated into categories to illustrate the most effective ways to offer words of support for someone living with Parkinson’s disease.

Communicating with Love

It’s essential to recognize that every person’s Parkinson’s diagnosis is unique. Words that are meaningful for one person may not be what another person wants or needs.

Ultimately, approaching the conversation with empathy and understanding is key. If your friend or family member expresses they need space or require support in a specific way, respecting their wishes and validating their feelings are the most effective ways to communicate your love.

Additionally, while it may be tempting to offer clichés (e.g., “Everything will be okay!” “This too shall pass!”), these may unintentionally minimize a person’s feelings and experiences with PD.

Rather than offering these platitudes, consider the following alternatives for showing support and encouragement.

Words of Support

Many survey respondents expressed that some of the most helpful words they’ve received reinforce that they are not alone in their diagnosis. The simple act of acknowledging you see them and you’re there for them can bring the greatest comfort.

These include reinforcing statements such as:

“You are not alone.”

“WE can handle Parkinson’s.”

“You’re my person. I will never judge you or be embarrassed of you.”

“Educate me so I can understand.”

“You are, and will, always be loved.”

“I will be there for you.”

“Seeing you today puts a big smile on my face.”

Emphasizing your unwavering support and willingness to learn more about Parkinson’s can be powerful, allowing you to show up for your loved one the way they need most.

Words of Affirmation

Similarly, using affirming language can help people with Parkinson’s feel seen.

Medicine, exercise, and a healthy diet are hugely beneficial to improving many of the symptoms of Parkinson’s, but it’s not always easy for people with PD to prioritize these.

Acknowledging the effort someone is making to manage their disease can be hugely motivating.

These words may include:

“I admire your determination to stay fit and flexible and keep Parkinson’s at bay.”

“You look good. Keep going.”

“Exercise has really helped you!”

“You have a spark in your eyes.”

 “I admire how hard you work to keep your symptoms from progressing.”

“You are brave; you are strong; you’ve got this—fight, fight, fight.”

Note that while it may seem encouraging to tell someone they “don’t look like they have Parkinson’s,” this may come off as dismissive of the non-motor symptoms (less visible, but equally impactful) common to PD.

Instead, acknowledge the effort your loved one is putting in to improve their symptoms and reaffirm their hard work is paying off.

Words of Advice

For some, the practical advice from healthcare professionals and movement disorder specialists has been the most inspiring.

In particular, exercise advice had the strongest reach, including:

“Exercise as much as possible.”

“Exercise is medicine.”

“Exercise can slow PD and possibly reverse some development.”

“Keep moving!”

“Moving water never freezes.”

Exercise has been proven to help alleviate some of the symptoms of Parkinson’s, improving quality of life and allowing people to live better. Words like these reinforce the importance of exercise while giving people with PD agency over their Parkinson’s diagnosis.

Words of Inspiration

Sometimes, the most powerful words are those which spark inspiration.

Here are several encouraging phrases that stuck with people in our own PCLA community:

“Let no one or nothing stand in your way. Continue to evolve as a human being, as a member of this community, as a contributing member of the human race. You have a purpose. It’s up to you to discover it and act.”

“Take control of your own health, listen to your heart, and use your head!”

“People don’t die OF Parkinson’s, they die WITH Parkinson’s.”

“Find joy in each day!”

“Your life does not end with this diagnosis.”

“Cultivate an attitude of gratitude.”

“Just take one day at a time.”

For many, the most impactful advice is that which sparks hope. Reminding people of the progress they’ve made and highlighting the good in their lives can be a source of motivation and lightness.

There’s No “One Size Fits All” Approach to Encouragement

Whether they’re newly diagnosed or deep into their Parkinson’s journey, each person living with Parkinson’s has a unique relationship with their disease, and their feelings may shift on a daily basis.

Even with the best intentions and words of encouragement, your words may not land exactly as intended. That’s okay—continue to practice patience, understanding, and empathy, and remember that the most important thing is that you continue to keep the door open for support and communication.

Thank you to the over 115 survey respondents! Your answers help inform the invaluable resources we provide for people living with Parkinson’s and their care partners.

Are there any words of encouragement that greatly impacted you as someone living with Parkinson’s? Let us know at [email protected]!